Kayelee

We had some fun painting toes today!!! Kiwi loved it.

This was the day before all the happenings she was sick and fell asleep on the table just like that.

This is an update as of wednesday. I am way too tired to write the whole story so if you are coming upon this for the first time you are getting bits and pieces sorry. I am going to write a detailed post later of all that took place. I wrote this out to my family so it is kind of in letter for for that reason. but I am too tired tonight to write anything else so for tonight here you go...

Here is an update... They think (pretty sure but not 100%) right now that she has Hemolytic Uremic Syndrome you can look it up for more details if you want but basically bad toxins are bugging her kidneys and blood. Right now they are really trying to get her kidneys to do better, at least they are staying the same and not getting worse like they were. They are giving her fluids constantly to keep her flushed they just don't want to give her to much and have them stop so they are watching her urine out put pretty close. If she gets too much fluid the kidneys will stop putting out urine and then the lungs will fill with fluid. And if the kidney function gets much worse they will have to do dialysis, so we really need her kidneys to get better they are really hurting right now from all the toxins from the HUS.The reason we were hoping for them to find first e-coli bacteria and then most recently pneumonia is because they would like the cause for the Hemolytic Uremic Syndrome (HUS) to be caused by bacteria, and those are the two bacteria causes it could be. There is a very rare cause that is genetic that would be not so good. Neither is good but those two causes would be better. Today they did some tests and it doesn't look like pneumonia and it doesn't look like e-coli either. So that is not good but they are still hoping to find that bacteria and so are we. They are waiting for some more test results tomorrow that will hopefully be more conclusive I will try to send an e-mail out if there is a big update. She did poop late tonight (hooray!!!) (I don't often cheer for poop but I did tonight and Kayelee was so proud of herself she said "now we can go home" She was hoping that was her ticket out of here it was cute. The poop was not at all diarrhea but if they could find some bacteria in that, that would be so good. They sent it away for testing so we will see. Her temperature was a bit elevated tonight but they think she has a UTI and they are leaving it untreated because the antibiotics will harm the kidneys more so we are hoping the infection will not cause fever. It came down a little bit so let’s hope.She has had 3 half pints of blood put into her little body since we have been here but she has not had to have any more today so that is good she is holding her own a bit so hopefully that will continue to be the case. Mostly she is staying stable witch is way better than worse but we would love start seeing some improvement.They are just walking some fine lines as to what is best and they are trying very hard to find the cause of the HUS and get her kidneys functioning better.I just wanted to THANK everyone so so very much for their fasting and prayers we have felt them both Kayelee and I. Kayelee has been so strong she shed her first tears tonight when they had to poke her again for more blood, she asked me to love on her while they did it and she dried them right up after they were done. Her little spirit is so sweet and she still sends a little spunk my way every once in a while and I love it. We love you and thanks again for your many, prayers, fasting, calls, concern, everything. We feel so blessed to have such an amazing family!!I hate to ask for one more thing but Lizzie came down with something today and is feeling pretty sick herself (nothing like Kayelee) but she has a fever and is throwing up she was feeling rotten tonight and Joe is trying to juggle all the other kids and work when he can so we hope her illness Is fast so maybe a few prayers her way would be good to so she doesn’t get worse and it makes things easier for her and Joe and the other kids. She has had kind of shock with this whole thing as I have never spent a night away from her and she is still nursing, so things are kind of tough for her right now too. I do have to say Joe has been absolutly amazing he has taken care of the other kids so well along with trying to get some work done. I asked him today if the kids have been keeping up with their homework and they haven't skipped a beat. He is such an amazing Daddy and husband. I can't imagine what my house looks like right now:) but my kids are being well taken care of I love being able to know that while I am here with Kayelee.Thank you guys again we love you so so much!!!!