Kiwi

She just looks so sweet and peaceful in these pictures.

Grandma Kaye and Kayelee (Kayelee is actually named after my Mom, my sister, and I. My mom spells her name Kaye and Lee is a family name of ours and my sister's middle name is Lee, Kayelee's middle name is Ruth and that is my middle name and I am named after a great women my Great Aunt Ruth so she is named after all three girls in my family, Kaye Lee Ruth. I love her name.

Spoiled by Grandpa and Grandma

This was one of my favorite moments with Kayelee in the hospital. A family in our ward gave her that build a bear and she was feeling pretty rotten that day, this is the night the fever spiked and they found out she had pnemonia I was very worried about her. They started her on the antibiotics and then finally gave her some tylenol because the fever was so high. They took her off the fluid because her lungs were struggling but taking her of the fluids also meant the kidney's might struggle. The PICU doc came in to see if she needed to be admitted to the PICU it was just a scary night for us. Anyway after they gave her the tylenol she started to feel little bit better and remembered the kitty and she wanted to dress it up it was late and I knew I should probably have her sleep but I wanted to take that special moment to play and be with her and make her feel like a princess. so we played princess for a while Kayelee LOVED it and it will be forever engrained in my memories. She wanted to see herself in the mirror after we put the crown on her and she said I just need these things out of my nose (they had put her on oxygen because her levels were low) and I told her those did not matter that she was beautiful no matter what. It was a sweet memory with her I will never forget. Princess are made from the inside out and she is one of the strongest little princess I have ever seen. It has been amazing to me to see the strength of her spirit. Because our spirits are created from a God I believe we have strength beyond what we know, we can go through harder things then we ever thought we could. Our bodys are weak but our spirits are strong, I know that God given strength along with all the fasting and prayers have made it possible for her physical body to heal. I think all of us would be suprised at how strong we truly are when given the test.

I just thought it was cute how she sometimes sleeps with her legs crossed like that.

Grandma and Amanda, they helped so much it was so nice to have them here and Kayelee loved seeing them.

Well... Kayelee asked me mom do you want to play tic tac toe and I said sure I walked over and she had two tic tac toe grids drawn on each thigh with a black crayon. Then she was jumping all around and monitors and such were beeping and beeping because she was being so wiggly. And when bedtime rolled around she could not go to sleep. I am glad to see her spunk is back even if they won't let us go home yet.

As far as how she is doing in terms of us getting out of here her numbers are doing slightly better over time, she is improving just not really fast. They are very hopeful she will not need the plasmapheresis now but they are going to leave the catheter in there for now just in case. If she can continue to do better and not need anymore blood transfusions, and eat and drink on her own over the course of a few days I think they will let us go home. Maybe next week if we don’t have any big set backs and she can get her hemoglobin up. Her hemoglobin is hanging out right around a 6-7 and she needs to be a 10-12 so she is pretty low there and her platelets are around 30,000-40,000 and she needs to be up around 130,000-150,000. She will probably need blood at least one more time so we will see. They are actually talking about words of home for us though which is an improvement, they still say days and maybe even a week but I don't think they think months anymore. Her kidneys are doing much better and starting to function more and more on their own. The kidney levels have come down significantly which is good they are still not normal but way better then they were when we came in.

It was wonderful having my parents here I think they really lifted Kayelee's spirits and they did mine so much. The first thing Kayelee asked the next morning after they came is "did Grandma go home?" Grandma was right there by Kayelee and she said "Hi Kayelee" She was grinning ear to ear and so glad to know Grandma had stayed throughout the night. I know my parents are so busy right now on their mission getting everything ready for the upcoming treks but it was a selfless act of love for them to come and be with Kayelee and me. I had told my mom the night before as I was crying to her about Kayelee's condition that I now really knew now how much she loved me. I love Kayelee and all my children so much and would do anything for them and I think when times are a little rougher like these you realize the strong bond of love a mother has for her child and that you would do anything even give your life for that child if that was what it took. It helps me understand a little more the strong bond of love my own mother has for me and it has help me understand the strong bond of love that our Heavenly Father has for us. It is sometimes so sweetly overwhelming to know we are loved that much. There really has been some sweet learning experiences as there always is with times like these. I think I have learned a lot about love with this experience I can’t believe the outpouring of love that has come from all of you. I truly believe Kayelee would not be where she is it terms of getting better with out all your love, fasting, and many prayers. Thanks so much.

Well we will see what today brings… Hopefully good news. I will keep you posted.